REMEDY : BNSSG referral pathways & Joint Formulary


Home > Children & Young People > Chronic Fatigue (ME/CFS) >

ME/CFS

Checked: 05-05-2022 by Vicky Ryan Next Review: 05-05-2023

Principles of Management

This service is provided by the Royal United Hospitals Bath NHS Foundation Trust for patients aged under 18 years. The RUH Specialist Treatment for Children & Young People with Fatigue webpage has leaflets for families and other resources including information about support groups, as well as information on “post COVID”

Children and young people need to have had symptoms for at least three months before a diagnosis can be made. Before a diagnosis is made, children and young people need to have had screening blood tests to rule out other causes of fatigue (please see the referral proforma in link below for further details).

 All young people need to be seen by a paediatrician (in parallel, not necessarily before the referral). If there is a local issue, i.e they cannot access a Paediatrician due to their age,  then we would accept a face to face assessment and examination by the GP to exclude other causes of fatigue. (As per the proforma).  

Unlike for adults, there is no criteria based access policy for referral for Children with suspected ME/CFS.

Referral

Referrals should be made via eRS using the referral form. The form is also available as an EMIS template.

Please ensure the patient has had all the necessary blood tests detailed on the form within the last 12 months.



Efforts are made to ensure the accuracy and agreement of these guidelines, including any content uploaded, referred to or linked to from the system. However, BNSSG ICB cannot guarantee this. This guidance does not override the individual responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or guardian or carer, in accordance with the mental capacity act, and informed by the summary of product characteristics of any drugs they are considering. Practitioners are required to perform their duties in accordance with the law and their regulators and nothing in this guidance should be interpreted in a way that would be inconsistent with compliance with those duties.

Information provided through Remedy is continually updated so please be aware any printed copies may quickly become out of date.